Parent Carers

A parent carer is someone over the age of 18 who is looking after a child or young person with an illness, disability, or additional need, for whom they have parental responsibility.

You may also find this page useful if you are a grandparent, other relative or family friend looking after a child with an illness, disability or additional need for whom you don’t have parental responsibility.

Our Carer Information and Support Groups are open to all carers over the age of 18 who are registered with Carers Bucks. For more information, please see Carer Information and Support Groups.

We have collated some links to organisations that we hope you will find helpful. Some are Buckinghamshire-based, and some are national organisations. This is not an exhaustive list, so if there are other resources that you feel would be useful to share, please do let us know. Please note that Carers Bucks doesn’t accept responsibility for the content of any external organisations.

Autism Bucks

Buckinghamshire Council – Special educational needs and disabilities (SEND Local Offer)

Buckinghamshire Council Family Information Service

Buckinghamshire Council Integrated SEND Service (iSEND)

Buckinghamshire Council SENDIAS service – website and leaflet

Calm Little Minds – Building Strong Resilient Families

Cianna’s Smile – offers support and education to families affected by Sickle Cell and advocating for Sickle Cell awareness in Slough, Reading, High Wycombe, Aylesbury and Swindon.

Disabled Children’s Register MAX card – Buckinghamshire Council Family Infomation Service and My Max Card website

Families and Carers Together in Buckinghamshire (FACT Bucks)

Family Centres across Buckinghamshire

Greater Resources for Autism Supporting Parents and Siblings (G.R.A.S.P.S) – 01296 486995 or

SEND Local Offer – Buckinghamshire Councils’ special educational needs and disabilities (SEND) local offer sets out the support available in Buckinghamshire for children and young people aged 0 to 25 with SEND.

South Bucks Down’s Syndrome Group

South Bucks Pathological Demand Avoidance support group

SPACE Support Chesham & South Bucks for parents and carers of children with ADHD, Autism and Challenging Behaviour

Support for parent carers in Flackwell Heath –

Talkback UK

The Harbour support for parent carers in Little Chalfont- Facebook and website

Thomley Hall – for people of all abilities and disabilities

Young Adult Carers Bucks – Carers Bucks’ Young Adult Carers service

Young Carers Bucks – Carers Bucks’ Young Carers service

Action for Children

Carers Allowance

CEA Card – The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.

Contact – the charity for families with disabled children

Disability Living Allowance

Family Fund

Fledglings – Clothing, Toys and Sensory Products, Supporting Children and Adults with Additional Needs

Independent Provider of Special Education Advice (IPSEA)

National Attention Deficit Disorder Information and Support Service (ADDISS)

Neurodiverse Self Advocacy

Personal Independence Payment

Sibs – for brothers and sisters of disabled children and adults

SOS!SEN – supporting children and young people with special educational needs and disabilities

The 3H Foundation – they offer small holiday grants for carers and families with a disabled family member

Young Minds

Useful resources and support for parents/carers and their families – a personal resource sheet compiled by Angela from Buckinghamshire Family Information Service. Details are subject to change so please ensure you check the Buckinghamshire Family Information Service website for further information and updates.

Are you caring for someone?

Do you look after someone who cannot manage without you because they are ill, frail or have a disability? 

If so, you are a carer and Carers Bucks can help you.